Find Your Funding Opportunity
Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry
Service
|
Source |
Final Application Due Date |
Funding Available
|
Match Required
|
|---|---|---|---|---|
| Health Care |
Federal
HHS |
04-04-2025 | $2.3 M | No Match Required |
-
Service
-
Source
-
Final Application Due Date
-
Funding Available
-
Match Required
Status
- Expected Number of Awards 19
- Opportunity Type Discretionary
-
CFDA
93.073 -- Birth Defects and Developmental Disabilities - Prevention and Surveillance
Description
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Eligibility
- IHE
- Local Government
- Non-Profit
- Other
- State Government
- Tribal Government
Additional Eligibility Information
Organizations will determine eligibility per Section 399V-2 of the Public Health Service Act (42 U.S.C. 280g-13
Key Date(s)
- August 08, 2024: Forecasted Date
- August 23, 2024: Last Updated Date
- February 03, 2025: Estimated Post Date
- April 04, 2025: Estimated Application Due Date
- May 04, 2025: Application Archive Date
- August 01, 2025: Estimated Award Date
- September 01, 2025: Estimated Project Start Date